| By Marilyn G. Truscott,
Alzheimer Society of Canada
Written Nov. and Dec., 2004
As I sit at my dining room table on this early November day,
looking out to our backyard garden, I can see our magenta and
pink chrysanthemums vividly blooming. The frosts have killed all
the other flowers in my yard at this late fall date, but the chrysanthemums,
beautiful, enduring and strong, are still giving us a glorious
display. Chrysanthemums are an important Japanese symbol which
one often sees in their art and fabrics. In looking at these flowers
in my back yard, I am reminded of the Alzheimer's Disease International
(A.D.I.) Conference a short month ago, and the beautiful, enduring
and strong impressions I gained of Japan and the Japanese people.
I have had the privilege to attend three A.D.I. conferences,
each unique and wonderful, Barcelona in 2002, Santa Domingo in
2003, and now Kyoto in 2004. I hope that everyone involved in
our Alzheimer Societies will some day get an opportunity to participate
in one of these inspiring meetings.
Traveling to Japan
My husband, Bill, and I left Toronto very early on October 8
with great anticipation of the exciting trip ahead. But the trip
did not get off to an auspicious beginning! Arriving in Vancouver
we learned that our flight to Osaka was delayed indefinitely due
to the worst typhoon of the year. Of course we had no interest
in our plane flying over the Pacific with no guarantee of landing
at the other side, so we waited patiently, pacing the Vancouver
airport from end to end, filling in time with coffee and snacks.
We worried about the damage for the Japanese people from this
terrible storm. Finally, we were aloft!
The flight was smooth until we got close to Japan, and just as
the flight attendants reached our row to serve breakfast, the
plane started to tremble slightly. We had approached the edge
of the typhoon winds, and the breakfast service would have to
shut down. I estimated that only ten people on the plane had missed
the breakfast serving, and we were two of those ten! We had to
make do sharing our emergency supply of one nut and seed bar and
a tiny piece of chocolate, the smell of bacon and eggs, orange
juice and coffee tantalizing our noses from the rows around us.
At last we landed, and the passage through Customs and Immigration
was surprisingly quick. We searched for food. Our flights had
been scheduled to land us in Osaka early in the afternoon. Now
it was late in the evening, and the airport food services had
closed. Our taxi shuttle service, booked to take us directly to
our hotel in Kyoto was also closed. I sat down dejected and hungry
beside the shuttle desk, wondering how we would spend the night.
But our luck was changing! A lovely Japanese woman, a doctor from
Kyoto, was also looking for the shuttle service. She had returned
to Japan on our flight after a short holiday in Canada. We looked
lost. Our Japanese angel asked if she could help translate, and
with her little pieces of English she managed to arrange for us
to share a taxi to Kyoto. We had a lovely ride in the dark of
night, hearing about her travels in Canada, and learning about
the landmarks of lights around. Finally we reached our hotel,
the New Miyako Hotel. In the dark we had no idea where we were.
Our lovely bedroom was a welcome sight! And we slept deeply to
make up for the ten time zones we had flown through.
Saturday morning we woke to a gorgeous warm day in Kyoto. We
opened our hotel drapes and were surprised to see that we were
facing the Kyoto train station. We could see the bullet train
(Shinkansen) going back and forth, as well as the slower trains.
Across the street, at the train station is an enormous shopping
mall, which extends for many blocks. Parts of this mall are ultra-modern,
with the most creative architectural design, in one part there
are escalators inside the building reaching 10 or more floors,
but also outside the building. I had never seen an outdoor escalator
before, not an appropriate device in our snowy, icy Canadian climate!
The railway station area is surrounded by numerous cafes and restaurants
(including a MacDonald’s). We were fascinated by the displays
of menu items shown outside each dining shop; each platter beautifully
decorated and priced. It was so easy to decide on a meal. We did
not have to know Japanese; we simply pointed to the platters in
the window that we wanted. We did not always know what we were
eating, and I could not get translations of many of the vegetables.
The spices, sauces and presentations of the dishes were so exotic,
that we anticipated each meal with great excitement, wondering
what we would be trying next. Certainly it would be seafood, if
the choice was left up to my husband. We got to know the staff
at a little café which seemed to be frequented by local
working people, and early each morning we went there for smoked
salmon, rice, a bowl of miso soup, mystery vegetables, an egg,
and seaweed. Very nutritious, very delicious.
We found that the prices of meals varied wildly, and we could
have a dinner platter for $7 U.S. each, or for $70 each. Or even
higher. Our special breakfast cost less than $10 U.S. for both
of us. We discovered that the Japanese are master bakers, and
their breads and pastries are incredibly delicious. They bake
sweet buns with all sorts of dried or fresh fruit and nut fillings,
stuffed rolls and croissants with ham, cheese, sausage and vegetables.
They make cheesecake in little squares and wedges with all sorts
of fruits. Many of the pastries were works of art. We quickly
realized that beauty of presentation is an important part of Japanese
culture. Every day we bought a new variety of pastries to take
back to our hotel room and try with bottled cold green tea. We
tried many flavours of fruit drinks and flavoured teas and green
teas from the drink dispensers located throughout the malls. But
there were more treats yet to come!
We slowly recovered from jet lag, taking a quiet first day learning
about our environs, walking around the area near our hotel. We
also learned about Japanese modern technology and engineering.
In some public washrooms there were hand dryers that you put your
hands into downwards, they envelope your hands and are very fast
end efficient. The toilet in our hotel had so many buttons and
levers on it that it terrified me. I got Bill to test it out to
see what all the buttons were for. Water squirts one way or another
way, etc, depending on the button; you almost need a special course
to understand how to use the toilet without drenching or drowning
yourself. But once you get used to it, it’s another very
ingenious device!
Our hotel room was lovely. It was compact, no space wasted, and
we were given two single beds placed right close together. The
chairs and beds were very low to the floor. There were very convenient,
space-saving closets, so the room size, although small, was more
than adequate. The hotel staff were most pleasant and helpful.
And we found that treatment wherever we went. We merely had to
stand at a street corner looking puzzled, and a friendly Japanese
would come up to us and ask, “May I help you?” More
often than not, our kindly helper would offer to take us in the
direction we wanted to go, on the pretext that, “I’m
going that way also”. We were given such courteous help,
and smiles whenever we looked at anyone. Kyoto is a very friendly
city.
We had to do some sight-seeing, of course! We knew from previous
A.D.I. conferences that once the conference started we would not
see any more of the city. We would have to crush in as much touring
as possible in our remaining time before Thursday. We signed up
at our hotel for morning and afternoon tours of Kyoto, full of
highlights of the city. Kyoto is a fascinating city, with surprises
at every turn. Squashed up against the traditional old-style Japanese
homes and Shinto shrines you will see modern buildings of the
most recent design. There is a lovely river running through the
city, and many modern bridges, and then you will come across an
old gate for a shrine or Buddhist temple. On the streets you will
see Japanese women wearing chic high couture (from the designer
clothing stores in the mall at the Station), or modern casual
wear in fashion in Los Angeles, or the traditional kimono with
fancy sash and belt, white stockings with split toe, and black
thong shoes. So many contrasts, the ancient Japan and the modern
Japan, living in harmony side-by-side.
I loved seeing the local women in their traditional formal dress.
Bill and I went to a mall shop that sold new kimonos and sashes,
finely woven in silk with delicate, complex patterns. These items
sell for $250 U.S. to $2000 U.S. just for a sash around the waist.
Hoping to buy a kimono for me to take home to Canada, we went
to the Kyoto Handicraft Center to comb through the many shops
that sell new kimonos (cotton, polyester, or silk), and antique
kimonos. Prices for antique kimonos vary from $500 to $6000 U.S.
and more, and most of these garments are indescribably beautiful,
with hand-embroidery on flowers, dragons. It was a treat just
to see them and touch them. I did end up with a pretty purple
kimono with flowers all over, inside our budget ($50 U.S.). There
were so many things to tempt us at the Handicraft Market: pottery,
bells, wall-hangings, origami, carvings, sculpture. We easily
found just the right gifts to take home! But there was more to
see later in other shops.
I was particularly fascinated by the multitude of shrines and
temples dotting the horizon, and lining the streets. Kyoto is
said to have approximately 300 Shinto shrines and 1600 Buddhist
temples. Our guide told us that Japanese people go to both, to
Shinto shrines for blessings of good luck, prosperity, health,
weddings, and other prayers for regular events in life, and they
go to the Buddhist temples for funerals and serious prayer. We
were very fortunate to come upon both a baby christening and a
wedding ceremony at a Shinto shrine. The baby was wrapped in a
traditional fancy red cloth, with the baby’s grandmother
dressed in her lovely kimono. The wedding was a mix of eastern
and western, bride wearing a flowing white gown, and bridesmaids
in pale pink flowered kimonos. So picturesque to see this in the
gardens of the shrine!
Kyoto is a very beautiful city. According to our guide, Kyoto
used to be named Heian Kyo (“Peace Capital”) until
the mid-700’s, and then became known as Kyoto (“Capital
Capital”), when it was the Shogun’s palace and capital
of Japan, before the capital moved to Tokyo. The Shogun ruled
here but also went to the Imperial Palace in Tokyo, consequently
there are many important buildings related to the Shogun.
We toured Higashi Honganji Temple, a beautiful wooden structure
with ornate carved beams. While we were there a prayer service
was ending, and we quietly got to see some of the Buddhist prayer
ceremonies from the far edge of the tatami mats. In the Japanese
temples and shrines, as well as the palace, one gets such a sense
of space and simplicity. The floors were wide and generally clean
dark wood or tatami mats, and the decorations were generally extremely
ornate wood carvings in the structural elements of the buildings.
Nijo Castle, the Kyoto residence of the Tokugawa Shogun, was
built in 1603, and it showed that simplicity of design, yet with
considerable decoration in surprising places (doors, gates). Clean
lines to the empty rooms, however the walls, ceilings and cornices
were beautifully painted with traditional Japanese patterns and
symbols, and there were flowers (Chrysanthemums for example) on
the walls and ceilings and pine trees, blooming cherry trees,
tigers, herons and falcons, and garden scenes on the large walls
of most of the rooms. The huge delicate paintings of the trees
seemed to bring the outdoor gardens into the open interior. I
asked the guide about the fancy stamped and carved metalwork pieces
(like medallions) placed at intervals on the walls boards, and
was told that they were placed there to hide the joins between
joists and large timbers. Wherever you looked there were unique
designs, from the strong wooden gates and white plaster and cut
stone walls, to the careful pruning of the pine trees and other
trees and bushes. The Nijo Castle garden was very beautiful, with
a pond of enormous Koi fish and waterlilies, and large rocks jutting
out of the water surface.
We were glad of the bright sunlight when we saw Kinkakuji Temple,
also called the “Golden Pavilion”, covered in gold
leaf, and from our viewpoint across the wide pond the sunlight
glinted off the roofs of the three tiers, like liquid gold. We
walked around the beautiful pond and enjoyed the tranquility and
beauty, as the Shogun must have done at the end of the 1300’s
when he built the gardens. We were amazed at how much pruning
was done to the trees and bushes, and how this enhanced their
shapes. One very ancient pine tree was very extremely pruned and
shaped, like a giant Bonsai tree; one branch had been encouraged
to grow extremely long and was held up in place by a careful network
of poles. The tree shape with its long branch was reminiscent
of a ship, in which to travel to heaven.
The Heian Shrine (Peace Shrine) was another unusual site, with
its reddish-orange (vermillion) pillars and bright green roofed
buildings. It was built in Chinese style in the 1800’s,
and at one entrance to the area there is an enormous gate with
giant vermillion pillars. The ponds around the shrine are very
beautiful and contrast starkly with the large graveled surface
linking the buildings of the shrine.
Of all the places we toured, my favourite was Sanju-Sangen-Do
Hall, a temple which is a National Treasure. This dark brown wooden
building is as long as a soccer field. It contains a wonderful
surprise: 1001 larger-than-life statues of the Buddhist deity,
“Kannon”, carved in the 12th and 13th centuries. One
of these statues is an enormous seated Buddha “Kannon”,
and 500 of the Kannon statues stand on each side of it. Twenty-eight
images in front of these Kannon statues are guardian deities,
and there are also statues of the Thunder God and Wind God at
each end of the hall. The statues were made from Japanese cypress,
and the carvings are incredibly complex and detailed. I could
have stood for hours looking at these statues, each one was so
individual, with ten small heads in a crown around each head,
and 20 little hands reaching out from behind each statue, holding
various symbols.
Our last tour of a temple was to see the Kiyomizu Temple, a World
Heritage Site, with a very high temple with many upswept roofs.
At the site is a waterfall, which looked like a controlled spring
from which one could get water to drink. Winding paths led around
the temple and down into the ancient streets below. And our final
treat of the day was to walk on the street leading down from the
Kiyomizu Temple, a wonderful, colourful street lined with a variety
of shops, selling gorgeous Japanese pottery (from little bowls
to expensive art pieces), unusual bells and chimes (some of which
will be singing in our garden next spring), sweets made of pressed
fruits, pastries, many foods that we could not recognize, and
shops selling green soft ice-cream. We just had to try the green
ice-cream, flavoured with some kind of seaweed. It was delicious
and very refreshing. Emboldened by our ice cream experience, we
found another shop that sold cream puffs filled with green cream,
same flavour, and enjoyed that.
But we still had more adventures ahead of us!
For days we had been watching the Shinkansen trains go back and
forth. Bill said that he would love to have the experience of
riding on a really fast train. Well, there was no time like the
present, so we rushed over to the train station and found an information
booth agent who could speak a few words of English. “We
would like to go on the Shinkansen, not far, just to try riding
the train. What is the nearest place we can go to and return from?”
After a half hour of trying to make this amiable fellow understand
what we wanted, he advised Nagoya, and took us over to the ticket
agent, helped us buy tickets, and then took us right to the train
track entrance area. That's an example of typical Japanese courtesy!
The Shinkansen was a great ride, very fast, these trains travel
close to 200 km/hour, and they are so smooth and quiet that we
felt very little motion and little noise. The train stops gently
and quietly, like a skyscraper elevator coming down non-stop from
the 100th floor and slowing abruptly to cradle itself gently to
the ground floor level. The train stopped precisely at a marking
line for each car, and left and arrived precisely on the scheduled
time. Japanese efficiency and technology at its best! At over
$100 U.S. each, this was definitely the most expensive 45 minute
one-way ride we’ve ever had (or are likely to have), but
it was worth the price! Where in Canada will we find a bullet
train?!
At the Nagoya train station we found the information booth and
looked at the Nagoya map. Where could we go within a 5 hour period
before our return train to Kyoto? We carefully checked the map:
temples, shrines, art galleries, museums; many choices. And then
Bill spotted “Orchid Garden”. He knows how much I
love flowers, so he bundled me into a taxi and off we went to
tour the most beautiful orchid collection I’ve ever seen.
The displays were stunning, indescribable, with Ikebana arrangements,
garden pathways, outdoor ponds, and an atrium filled with orchids
right up the walls. And the final part to tour was the sales area
in the foyer. For $10 U.S. we could buy four large bunches of
flowers, an amazing price by our Canadian standards. There were
all kinds of choices: lilies, daisies, chrysanthemums, roses,
etc; but I chose orchids. We went back to the train station loaded
down with a huge bag of magenta and yellow dendrobium orchids
and two pretty plastic vases. And so, for the rest of my stay
in Japan I had a hotel room with two vases overflowing with orchids!
The Conference Begins
The next day was a quiet day, moving our luggage (and orchids!)
to the Kyoto Takaragaike Prince Hotel, located right adjacent
to the conference centre, in preparation for the A.D.I. conference,
which would begin the morning of October 14th with the Council
Meeting.
What a beautiful setting for a conference centre! The centre
was also located close to the subway station, so it was very easy
for people staying in other parts of the city to get to the conference.
And it was easy for Bill and me to get back into the city centre
for evening meals, to continue our exploration of Japanese cuisine.
On October 14th we walked the short distance from the Prince
Hotel over to the Conference Centre very early to get our bearings
there and find our meeting room. As the delegates trickled in
slowly, at first and then in a crowd, I was able to catch up with
old friends from the previous two ADI meetings and learn about
others I was just now meeting, where they were from, what their
roles and their goals were, and to hear about exciting research
news and also activities in other countries. Bill and I exchanged
greetings with our small group from the Alzheimer Society of Canada,
Board President Carl Parsons and Executive Director Steve Rudin,
and we prepared for the events ahead. The Council meeting formally
began, and after everyone introduced themselves, the business
meeting got underway.
Organizational items were decided on and announced, for example,
the upcoming 2005 meeting being planned for Istanbul, Turkey,
and the 2006 meeting for Berlin, Germany, and 2007 in Venezuela.
After 2007, the ADI meetings will be held every second year, to
reduce costs for the member countries. We heard about exciting
World Alzheimer’s Day activities recently held in various
countries. ADI plans to increase the visibility of World Alzheimer’s
Day, and to help member countries to influence their policy makers
to make provisions for the increasing impact of dementia in our
aging populations. Some delegates shared their own experiences
and goals in pressuring their governments to make change, such
as declaring Alzheimer Disease to be a national health priority.
There was much discussion that all members should support the
aim of including and consulting with people with dementia on issues
affecting them, and ideas shared on ways to do this, and including
people with dementia in committee and Board work.
Elections were held for some Council positions. Orien Reed (U.S.A.)
became the new Chairman, and Dr. Daisy Acosta (Dominican Republic),
Ruth Goldberg (Israel), and Wendy Fleming (New Zealand) were accepted
to fill two Council vacancies.
Elizabeth Rimmer, ADI CEO, gave her Executive Summary and told
us that 22 people with dementia were registered, sixteen from
Japan and six from other countries, this being a record attendance.
World Alzheimer’s Day had been a great success around the
globe, however Alzheimer Disease needs to be made higher in priority
by the public and governments. Steve Rudin (Canada) talked about
the proposed world team Ascent of Mount Kilimanjaro being planned
by our Alzheimer Society of British Columbia in Canada, and invited
the ADI membership to put forward a prominent candidate from their
countries to make a ten person team from around the globe to increase
awareness of dementia and to raise funds world-wide. After many
other items of routine business and interesting information, the
meeting ended. But the social contacts continued that evening,
as Council delegates joined again at the Kyoto Kukasi Hotel banquet
room to celebrate the 20th Birthday Party of ADI. We enjoyed a
Japanese buffet, speeches of congratulations, a little karaoke,
and warm fellowship.
On Thursday, October 15th, the conference started in earnest.
There were so many workshops to choose from, too often conflicts
where attending one meant sacrificing many others. The talks were
translated into English and Japanese, a great advantage for most
of us because there was a huge number of delegates from Japan,
and many of the speakers gave their talks in Japanese.
A number of talks and workshops touched on issues affecting people
with dementia, and I tried to attend these as well as many research
talks. Some topics that caught my special attention were the use
of dementia advocates in the United Kingdom, to protect the interests
of the person with dementia, even sometimes against the families’
wishes (Caroline Contley, U.K.); consultation methods developed
for people with dementia and people with memory problems who live
in care homes, to enable them to make their own decisions about
their care (Sylvia Cox, Scotland); the development of the National
Dementia organization in Scotland by and for people with dementia
(Christine McGregor, Scotland); a description of a national conference
held in London, England to get opinions from people with dementia
about their priority needs (Karen Litherland, U.K.); and a unique
interactive computer based tool to aid reminiscence and conversation
(CIRCA) developed by a group in Dundee, Scotland (Gary Gowans
and Jim Campbell et al, Scotland).
People with dementia participated in this conference in significant
ways. Speeches were given by six people with Alzheimer Disease
or a related disorder. Lynn Jackson (Canada) talked about her
own journey with Frontal Temporal Lobe Dementia, and her decisions
she has made for her later care. Doreen Cairns (Scotland) told
us about her story, and about the importance of the Scottish Dementia
Working Group (for people with dementia). Christine Bryden (Australia)
chaired our session and also gave a persuasive talk about including
people with dementia in making policy decisions. I gave a speech
about the problems of dementia being an "invisible disease" (the
"well" appearance on the outside often obscuring the great difficulties)
and the need for open communications with others so that these
difficulties can be appropriately supported.
In the Saturday Plenary Session, two speeches of major impact
were given by Nakajama Ochi and by another man from Japan. These
two men described their problems with early onset Alzheimer Disease
and the way they have (along with their wives) learned to cope
and to regain joyful lives. These two beautiful speeches ended
with the delegates standing in a huge wave and clapping loud and
long, tears streaming down their faces. I believe that these two
important speeches, which were given rapt attention by the many
Japanese news reporters in attendance, will have a long-lasting
effect to educate the Japanese public about dementia, reduce stigma
and fear, and open doors to Japanese people with dementia to regain
more control and supports in their lives.
The other notable participation from a person with dementia was
at the conference banquet, when a Japanese woman with Alzheimer
Disease sang some traditional folk songs. Her beautiful, sweet
voice left us in awe. I was so moved by her singing that I wrote
a poem in her honour later that night.
Pretty Kimono Lady
Pretty Kimono Lady
Sweetly sing your song
In your pink kimono
Shining silks and snowy thongs.
Pretty gentle lady
Dark hair swept in a crown
Our hearts lift up to you
As our tears fall down.
Your lyric lilting folk songs
Reach out into the crowd
And soon the smiling faces
Sing back to you aloud.
Your ancient songs do move us
And touch us to the core
We cheer and clap and smile and laugh
And make you offer more.
Lovely Kimono Lady
Whose hand I’ll never touch
In truth a sister traveler
I know your life so much
Your new and daily struggles
And puzzlement and pain
But singing to us bravely
Recalls your self again.
How beautiful your music.
This moment I can stay
Inside a crystal bubble
Time still, fears far away.
Our banquet was great fun. Bill and I were fortunate to have
a delightful Japanese psychiatrist seated at our table and he
translated the words of the songs and explained the entertainment
in excellent English for us. After our singer, a group of folk
dancers swept in with their bright costumes, and eventually they
had most of us on our feet doing a Japanese version of the "Conga
line" in traditional Japanese folk style. This was a great
way to get to know lots of people quickly, with everyone smiling
and laughing at their joy of the energetic dancing.
Our group of People with Dementia was assigned a large sitting
area away from the bustle of the hallways and speaking rooms.
This was a welcome haven to rest in and to meet with others, including
Myrna Blake from Singapore, and Kunio, Eicho and other Japanese
delegates and their care-partners and families. The A.D.I. and
Japanese organizers made full efforts to enable our participation
and they provided us with some lovely young women who looked after
our needs, brought in pastries and drinks, helped us with e-mail
on the computer in the room, and translated Japanese and English
for our members. With the translators and our heart-felt smiles,
we were able to communicate very well with each other.
There were so many special highlights for me at this conference.
The Yoshioka Rehabilitation Clinic in the Japanese Clinical Art
Association had set up an inspiring display from their art therapy
program called "12 Months of Art Therapy". As we walked
through a maze of corridors we were surrounded by the results
of twelve art projects beautifully framed and presented. Each
project is simple in concept (requires no previous training) and
takes few materials and only two hours of time start to finish.
The goal is to engage all the five senses during the activities.
As an avid hobbyist and amateur artist I found the projects fascinating
and immediately wanted to try them all myself. Programs like this
will be so stimulating and beneficial and I believe they should
be used everywhere. Masatake Uno maintains that art therapy helps
to strengthen a sense of self, bring people out of personal isolation,
and gives dignity to their productive behaviour and improves their
quality of life.
Because of my interest in the optimization of body, mind and
spirit for the optimization of cognitive functioning and quality
of life, and promoting creativity in people with dementia, I found
many special moments throughout the conference. As well as wonderful
talks and posters on horticulture, art, music and reminiscence
therapy, the living environment was stressed, for example in a
poster on the Community Alzheimer Healing Gardens in Boston (R.L.
Wilcox, U.S.A.) which uses garden elements in structure, texture,
colour and smell (herbs as well as flowers) to give joy and reminiscence
to a long-term care home, and also Naochiko Hyaka’s (Japan)
emphasis on habitat design making the outdoors an important part
of the care home. There were many posters and talks on nutrition
and non-pharmaceutical alternatives to promote healthy functioning
(so important when at present we have so few effective medications
available for Alzheimer Disease. Bill and I had many long discussions
with Dr. Nancy Emerson Lombardo (U.S.A.) about her and her colleagues’
exciting poster on interventions in Alzheimer Disease using proper
individual nutrition and nutritional supplements, exercise, social
supports, cognitive retraining and stress management techniques
(their Brain Wellness Program). We agreed with her on the great
importance to feed and stimulate the brain to maximize function
and quality of life.
Machiko Masuda (Japan) also stressed games and physical contact
and encouragement to enhance attentiveness and judgment and slow
progress of dementia. Other speakers (for example Kae Baba and
Miyuki Takabayashi of Japan) also focused on preventing the advancement
of dementia from the early stage.
Many workshops reported research results, biomedical research,
pharmaceutical studies, development of neuropsychological testing
and imaging techniques, and statistics on disease prevalence,
as well as studies of quality of life for caregivers. My favourite
topics were, of course, reports about new drugs in trials and
studies on the effectiveness of the long-term use of our current
Alzheimer medications. Other highlights of the meeting were to
talk personally about their research with so many prominent international
researchers, for example Dr. Howard Feldman (Canada) and Dr. Steven
DeKosky (U.S.A.). It was particularly special to have a meeting
with Dr. Atushi Murai and Dr. Nakao Fujimoto (Japan) and to learn
about Dr. Fujimoto’s Memory Clinic. We discussed at length
his system of using a Co-medical Assistant to do patient interviews
and follow-up and to provide on-going liaison between him, his
clinic and the community resources needed for the individual.
This liaison is generally lacking for patients around the world,
and a simple system of linking a doctor’s patients with
services and help would be extremely beneficial, such as Dr. Fujimoto
is using. In Canada we are working on liaison systems between
doctor’s offices and the local Alzheimer Society offices
and their access to local dementia services in various cities
and regions in Canada, following the lead shown by the cities
of Ottawa and Edmonton. My own local Society in Ontario will be
launching a pilot project with doctors in early January.
I know that the educational aspect of the A.D.I. meeting in Kyoto
will have long-reaching international effects. Christine Bryden
stayed on in Japan after the meeting to give numerous interviews.
The journalists at the meeting are still busy writing articles
about dementia, and publishing them not only in Japan but world-wide.
For example, a Japanese group was so taken with a powerful quote
by Helen Keller which Lynn Jackson used as an example of how she
herself lives, that they sent a team (reporter, translator and
photographer) to Canada to spend dedicated time with Lynn and
interview her friends and family for a long feature article syndicated
widely internationally. This article should appear in the New
Year. This team even came to Toronto on November 6th to attend
"A Changing Melody", a conference for people with dementia
and their care-partners sponsored by the Murray Alzheimer Research
and Education Program, the Alzheimer Society of Ontario and the
Alzheimer Society of Canada. This unique conference will be reported
world-wide through the efforts of Japanese reporters as a direct
result of the A.D.I. Conference. News groups have taken the speeches
members of our groups presented in Kyoto and published them widely
in the media in Japan. I feel very honoured that I have been part
of this educational sweep, which may well change cultural attitudes
in many parts of the world, particularly Japan and the Far East.
And so the conference ended. But the memories will continue,
sparked from our photographs, and my obsessive note-taking, and
the e-mails I receive from people I met in Kyoto. Perhaps it’s
time to renew my passport and start planning for Turkey!
A grateful thanks to the staff at A.D.I. and the Japanese organizers,
who made this wonderful conference happen. And a grateful thanks
to the Alzheimer Society of Canada for making it possible for
me to attend! I also want to thank my husband Bill for sharing
my discovery and excitement of Japan and for his help in aiding
my recollections and editing this report.
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with People
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