An exceptional meeting with a tremendous uplifting of
my spirit. I can use this day to keep me in a positive mind
set. Thank you. (person living with dementia).
Came with negative feeling. Going home very positive (person
living with dementia).
I found the session very informative and helpful. The presenters
with dementia were EXCELLENT (person living with dementia).
It was excellent! It particularly helped my husband who
has felt isolated and alone. He has felt useless and worthless.
Today, at least, he knows he has worth. I hope it stays! It
has given me hope (partner in care).
Excellent! As a result of attending today I have been sensitized
that having dementia is not as tragic as it all too often is
made out to be. So grateful to organization committee and all
the great volunteers (formal care provider/professional).
The above quotes represent just some of the many comments we
have received since the second A Changing Melody forum took place
on Saturday November 12th, 2005 at 89 Chestnut in Toronto, Ontario.
A Changing Melody is a learning and sharing forum specifically
designed for persons with early stage dementia and their partners
in care and is sponsored by the Murray Alzheimer Research and
Education Program (MAREP) in partnership with the Alzheimer Society
of Canada (ASC), the Alzheimer Society of Ontario (ASO), and the
Dementia Advocacy Support Network International (DASNI).
Final counts are still being tallied, but we estimate that over
150 people attended the second A Changing Melody. At the forum,
participants shared many tips and strategies for living with an
illness causing dementia and MAREP staff are currently pulling
those comments together to share with others. A copy of the tips
and strategies shared at the forum will be available on the MAREP
and ASC website’s shortly.
A formal evaluation of the second Changing Melody forum is currently
being conducted by MAREP to examine the experience and the impacts
of the forum on participants. The ultimate goal of the evaluation
is to develop a toolkit to help others develop and implement their
own forums for persons living with dementia and their family partners
in care. MAREP hopes to have this toolkit ready once the evaluation
process is completed, sometime in the new year.
Over the next month or so, the planning committee with be exploring
the possibility of holding a third Changing Melody in November
2006. Stay tuned for more information about future Changing Melody
forums.
For more information about A Changing Melody contact Sherry Dupuis
at MAREP at 519-888-4567, ext. 6188 or anyone of the partners
on the project.
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